Ever have one of those days where the world comes crashing in around you? Like the weight of the whole world is on top of you? I had one of those days yesterday. I kinda felt like that scene from the Wizard of Oz - where the witch gets squashed by the house, and all you see are her feet and striped stockings sticking out. (That was a witch right? I haven't seen that movie since I was a kid, and I'm way past being a kid lol).
Well, we got a call from the doctor yesterday with the results of the new test (which by the way cost us nearly $500!). The results were not good. The pediatrician had expected an improvement in the allergies. He has been telling us all along this is a temporary problem and should get better fairly quickly. Well, that's apparently not going to be the case. He tested "significantly worse" in all categories, and now is allergic to a bunch of new stuff - including almonds, walnuts, and most other nuts, soy and corn. Corn is an extremely difficult allergy on its own because corn is added to everything (can you say high fructose corn syrup?), but on top of everything else, it's nearly impossible. Most wheat free prepared foods substitute soy or corn - or both. A quick look at all our "convenience" specialty items we've bought for him (at great cost) shows why he's reacting so badly - they all have soy and/or corn in them. So until I can figure this all out he is going to only be eating plain fruit, vegetables and meat. And then there's the issue of what to cook it in - can't use butter or corn oil, or even crisco - which is made from soy... So maybe you can see why I'm a bit overwhelmed.
Our pediatrician is a wonderful doctor, but he tells us he is out of his element with this level of allergies, and wants us to see a specialist. He recommended the National Jewish Hospital in Denver, which apparently specializes in allergies. They are an 8+ hour drive away. And we have no insurance. And this is an ongoing problem. And our eight year old and his dad both have diabetes, which is expensive too. So yeah, that whole image of the house crashing down and squashing me? Not too far from reality lol. But I have a positive attitude about it, and I'm not depressed, as this post may sound. Just overwhelmed. But better today than I have been. I'm not sure how we're going to pay for it all, but one day at a time, right? This too shall pass. And I am soooo grateful that we're dealing with things that can be managed, and are not terminal. I have a friend whose husband recently passed away from cancer - within a couple of months of being diagnosed, leaving her with seven children to raise alone. And I have another friend whose kindergarten daughter has a degenerative disease which could (and will) take her life at any time. So given that perspective, I've got a walk in the park :) And I always did like parks anyway :D